We are the VACTERL Association Support Group; a support group dedicated to helping families affected by VACTERL/VATER Association and we are based in the UK. We are a group of families/friends that have dedicated their time to helping others affected by this condition; helping shine a light on how this condition affects those who have it and this who are affected by it.
Well like you, we either have this or we are affected by a loved one that has this; we know how difficult it can be to live with, full of ups and downs, so we just want to help you get to grips with this condition and point you in the right direction.
First and foremost you are going to need answers, this could be answers to questions you have, or more detail on specific areas that are affected by the condition, but more importantly how is this going to affect you or your loved one. This is where we shine, we have a wealth of knowledge about VACTERL, can answer lots of questions and have a good group of families who have been there, experienced it.
We aim to support families and to pass on any information that we may have through our online databases, and also hold an occasional meeting during the year. We are a new support group, so funding is short, therefore we are always looking for funding and would appreciate any help we can from you. If you are able to donate a little (even items such as stationary) please contact us. Feel free to browse around this site. If you have comments or questions, or simply need more information, Please feel free to contact us.